Sunday, February 28, 2010

Have your cookies...(But don't eat them)

It's that time of year again.
This year, both my girls came home sporting bright yellow envelopes, colorful order forms, and ear to ear grins.  Girl Scout cookies!

Of course, I put on a brave smile and listen to them chatter about what they will do with the money they earn.  The youngest is much, much more interested in what she, personally, can earn (a PSP!  All she has to do is sell one thousand boxes.  That doesn't sound too hard, right?)  But there's a little something in my oldest's eyes.

We won't be buying very many boxes.  They all have gluten, and dairy.  They all have corn.  The Dulce le Leches even have food coloring!

However, this seemed like the perfect opportunity to educate other allergy sufferers (especially those who might have fewer, easier allergens to navigate) on the finer points of cookie ordering.  For many, this is is the season that comes but once a year.  A season chock full of thin mints, hoedowns/peanut butter patties/tagalongs and Samoas/caramel deLites, adorable imps in brown and green vests and girl power galore.

Some place an order because they can't survive without the mints.  Others order simply because they want to support scouting.  And each troop gets a portion of the proceeds, while each girl is given incentives to strive for.  It's a win/win situation.  Unless you have food allergies.

If you do deal with food allergies, the dancing pigtails you see through the kitchen window when your doorbell rings may cause your heart to sink.  However, what few people realize is that each order form actually carries a list of ingredients for each of the cookie varieties.  You can look up the lists yourself at either Little Brownie Bakers or ABC Bakery (depending on which official Girl Scout bakery your local GS council chooses to order from.)  ABC Bakery is especially allergy friendly, with extra precautions in place.

If you simply can't (or don't want to) eat the cookies, you can ask your local girl scout about the Cookie Share program.  Some parents don't want to overplay the "give us money" number, but I think the program's kind of cool.  Basically, you sign up to buy a box or two or ten of girl scout cookies, and designate where you want the cookies to go.  Our local council offers to either send cases to the Military over seas, or to the local food bank.  The council chooses appropriate cookies (thin mints do not fair well in Afghanistan, but trefoils and do-si-dos will still melt in a serviceman's mouth) to be sent to the location and distributed appropriately.  I like to send to the military, since I hear they get pretty lonely and especially miss girl scout cookies...which are only available for a limited time.  The familiar cookies have been sent to brighten the days of disaster victims, as well.  And bring about smiles at the food pantry just when Christmas generosity has worn off and the "treats" section is looking thin. 

If you choose to donate, the cookies go to a good cause, the girl gets credit toward her incentive and the troop still earns their cut.  You get a receipt for your taxes.  Everyone is happy.

Saturday, February 27, 2010

Blue Dye

It's out there.  It's a neurostimulant.  It's actually being used as an experimental treatment for migraines.
I knew that it affected migraines because several years ago, we traced some very spectacular looking migraines (total pallor, projectile vomiting, collapse) to blue toothpaste and pretty blue jellybeans used in math centers.  (Count the red and blue jelly beans.  Now eat the blue ones.  How many are left?  No wonder Penguin doesn't like math.)

However, the greater medical community (and the even greater American populace) seems to remain in the dark. 

I recently had yet another argument with a pharmacist about the relevance of inactive ingredients in medications.  She stated that it wouldn't be serious.  I politely replied that it would counteract our attempts to treat the migraine by adding new triggers.  She disagreed, because there isn't a lot of blue in the medication.  It looks white and red.

This is the trouble.  Even if people begin to suspect a trigger, whether it's for migraines or stomach aches or behavioral issues, members of the medical community dismiss them in a hurry.  They're too quick to cast shadows of doubt on people's personal observations.   They ignore statements.  Talk over people in reassuring tones.  And sometimes we let them.  I know I used to.  And sometimes, especially when I'm sick (and it's regarding me) I let them.

But this was for my daughter.  So I persisted.
We spoke with a new neurologist on Wednesday.  She was interested, and believed us about the blue dye being a trigger.

Unfortunately, she's never had to deal with the pharmacy and inactive ingredients before.  And apparently she's had as much trouble with them as we did.  I think part of the problem is that it isn't the neurologist's job to look at the inactive ingredients of a medication.  It's the pharmacist's job to find a suitable form of a prescription medication.  They are supposed to be the experts in formulas.  The doctors are supposed to know diagnosis, tests to use for diagnosis, and suggested treatments.  It's the patient's job to choose a treatment, in consultation with the dr, and then carry it out.  It's the pharmacist's job to assist them in getting the suitable treatment. 

But when they don't feel like helping, it leaves the patient high and dry.  The government is making it more and more difficult to access compounded medication.  Compounding pharmacists need to protect themselves in order to serve the majority of their customers; and compounding pharmacies are a dying breed. 

With the rising awareness of dye reactions, inactive ingredients in medication is going to continue to be problematic.  And misinformed medical personnel can actually prolong diagnosis if the patient believes, in error, that medication is safe for them.  If it should be safe, but it causes a rash, or anxiety, or depression, or insomnia...these symptoms could be construed as complications of conditions being treated. 

How many people take medicine for depression?  Or blood pressure?  Or ADHD?  Or countless other mild, but chronic, medical conditions?  Ones that include symptoms like headaches, anxiety, behavioral issues, insomnia.  How do you know of your symptroms are solved by a medication that can cause the symptoms you're treating?  What sense is there in treating my daughter's migraine with a medication that contains an ingredient known to trigger her migraines? 

I may not have a medical degree, but that doesn't mean I don't need an answer to that question before taking a chance.  I'm concerned for the individuals who miss the fine print, who don't question the pharmacist, who suffer in the dark. 

But I'm not sure how to fix it. 

Wednesday, February 03, 2010

If I were to fix the healthcare system...
  • Forget insurance for everyone.  Healthcare for everyone.  Affordable healthcare.  
  • Standardized billing codes.  They have standard numbers for produce, they can create nationwide billing codes for well child, well adult, pap smear, emergency stitches, UTIs, heart attacks, etc.  
  • Responsibility in the healthcare field.  Everyone makes mistakes.  Doctors and nurses are human.  But grown ups own up to their mistakes.  If a healthcare provider makes an error, they should cover the costs of fixing it.  Period.  That's the way it is in any other industry.  If they forget to run a B12 test when they draw blood, they pay to draw more blood.  If they cause an allergic reaction by inadvertently giving a medication containing a known allergen (for the individual) the individual should not bear the cost of treatment.  (within reason.  If they insist on a -cillin drug and know that they'll react, it's their own fault.)  If they remove the wrong mole, they should cover the cost to go back in and remove the right one.
  • Full disclosure.  All options should be discussed.  And if an insurance plan does not cover the cost of a chosen course of treatment, a payment plan should be implemented.  One that takes into account a person's financial situation.  In other words, income should not dictate your access to the best treatments.  
  • For non-medically necessary treatments and procedures, predicted costs should be readily accessible.  The patient's portion of a payment for a ct scan or laparoscopic surgery "just to see" should be part of a decision making process if the patient feels it is relevant.  
  • An extremely unsatisfactory office visit deserves a refund of at least part of the copay.  The patient is the customer.  They should be treated with respect, educated to their degree of willingness and interest, and should be a partner in their own healthcare.  If a doctor disagrees with a patient, they should free them to go elsewhere.  Doctors should be free to admit when they aren't comfortable treating a patient's condition and not willing to learn.  This would probably cut down on misdiagnosis, and overuse of the mental health system.  :P 
  • Not sure if this should be a healthcare mandate, but patients should be encouraged to use doctors wisely.  Perhaps a "good patient" benefit for not overusing the cold/flu visits?  Or for getting standard tests run prior to an appointment so that you can have the best use of your, and the doctor's, time.  (A doctor can request or approve a request for tests but insist the patient come to an office visit to receive results and discuss options.) This would encourage doctors to educate patients on managing their health, and encourage patients to take charge of their own health, and make wise personal decisions (wait and see if a low grade fever breaks within 48 hours)  Perhaps having a health nurse who can reccomend home treatments with the caveat that any patient wanting to be seen will be given an appt would work. 
  • Pharmacies should be required to release a prescription (print an electronic one) if the patient requests it.  That way if there is a disagreement between patient and pharmacist, the patient can go to a different pharmacy.  This would encourage the pharmacist to work with patients, as well as empower patients to self advocate when necessary. 
  • The process for applying for insurance should be fixed.  You should be able to get a quote before submitting estimated payments.  You should be able to get quotes from several companies.  And you should be able to regularly shop around while insured, without endangering your insurance.  If currently insured, there should be no "pre-existing conditions", even if you're switching from employee sponsored to self subscribed.  And self subscribers shouldn't have to pay more than employee-sponsored programs do.  

Just a few of my thoughts after spending a day arguing with our new "insurance specific" pharmacy about whether or not blue dye reactions are valid, and another entire day waiting next to the phone to talk to a doctor about migraines and dye and medication options.   I can see where this insurance could be good for someone without allergies or extenuating circumstances.  But, we have extenuating circumstances.  And I don't have the patience for them to learn on us, especially if they don't want to learn from us. 

    Sunday, January 31, 2010

    Counting Blessings

    As the song says, some days are diamonds, and some days are stones.  When you find yourself thinking you need a slingshot to get rid of the stones, it's time to sit down and polish them.  So instead of complaining, I decided to start a list of blessings.

    I'm thankful that I have a curious child, who chooses complicated self-created (or adapted) science projects instead of the typical "model of a solar system" variety.  And that she at least tries to clean up after herself. 

    I'm thankful I have another child who refuses to go with the crowd, read what other kids are reading or watch what other kids are watching simply because "everyone else is".  She needs a reason.  It's frustrating, but it's a good quality that might keep her out of trouble someday.  

    I'm thankful for food allergies, that keep us from falling into the pizza practice, make us aware of the ingredients of our foods, and help us to focus on whole foods rather than fake "food like substances".

    We have an opportunity to begin with new doctors and a new slate, not square one.  Maybe the new doctors will be more informed about corn allergies and gluten intolerance and migraines and all our myriad of issues.  And if not, this is a great opportunity to educate them.  Hopefully with a minimum of discomfort and expenditure.  (Note that I'm working hard on this diamonds out of stone theory.)

    Our kids are blessed with people who love them enough to fill our house with toys, and our kids are grateful enough to appreciate these tokens of affection.  To play with them, love them, and use them often.

    Even if my car did die, I'm blessed with the ability to borrow spare family cars until the time when I find a car that meets all my personal needs (will run for several years without needing major overhaul repairs, will seat at least 5 safely, decent gas mileage, and is within our low budget.)  

    The rose Bumblebee helped me plant a few years ago is still alive and appears happy, if not bush like.

    The library is chock full of books I've never read, and my body ensures I take the time to enjoy them.  (Or at least that I have time to read them)  I'm next on the waiting list for "Her Fearful Symmetry", and just returned "Graceling".

    We may eat an awful lot of rice pasta, but we manage to gather around the table and eat as a family fairly regularly.

    Chocolate.  I'm eternally grateful for chocolate, especially Enjoy Life chocolate chips which not only hit the spot on their own, but make a perfect addition to baked goods. 

    Friday, January 15, 2010

    Franken-food Revisited

    We've long known that the unprocessed, unadorned food is most likely found on the outside aisles of the grocery store.  Produce, meats, bakery, deli, and refrigerated section are generally on the outside.  Work your way in to find cereals, snack bars, soda and the like. 

    Dieticians caution their clients to stick to the outside aisles.  The slow food movement, overlaying a shift towards "real food" and "whole food" diets, encourages people to stick to the outside aisles, where "real" food is. 

    But what you see isn't always what you get.  Pork, for instance, appears to be a slab of meat that was cut from the carcass of a pig.  Of course...most of us would rather not think of the logistics of how that slab of meat got from the field to our roasting pan, but we're pretty certain that we could trace it's journey if pressed to do so. 

    Science is changing everything. 

    With breaking new research, stem cells harvested from shoulder muscles can be used to grow pork.  No pig, no slaughter, no "Sooo-eeeey!"  required.  Excited researchers tell us that this technology will easily translate to other flesh foods, and potentially be used to design healthier meals.  Like burgers that unclog your arteries with "healthy" fish oil. 

    The thing is...It's still frankenfood.  It's frankenfood taken to the limits of Mary Shelley (author of the original Frankenstein)'s wildest nightmares.  It stretches the margins of my nightmares.  And the worst part? 

    Scientists are excited. 

    The article claims that the environmental impact will be impressive.  Somehow, my gut tells me their vision isn't of the multitude of industrial waste involved in the chemical production of fake food.  Plastic petrie dishes (made either from biodegradable corn or chemical laden petroleum sources), latex gloves, masks, the building itself.  Too much can go wrong. 

    I'm a life long animal lover.  A vegetarian who doesn't WANT to tumble.  (I'm eating ethically raised poultry but against my desires.)  I was once vegan, for the ethics surrounding the issues of animal consumption. 

    But I say slaughter the poor creatures and be done with it.  We can't play G-d by creating new food out of cells and DNA and test tubes.  The idea that they're even contemplating it turns my stomach. 

    Laboratory food is not the answer to world hunger.  World hunger is a political problem, causes of hunger are typically financially related rather than a lack of global calories.  It's cheaper to stick seeds in the ground, and anyone can do it, regardless of their educational status.  Besides, from what I understand the third world countries most in need of quick, convenient calories to save the masses would never accept some trumped up chemical soup.  They don't want to simply survive.  They want to thrive by their own hands, and they deserve that dignity. 

    We need to get back in fields, we need to recreate the fields, and start supporting our local farmers.  Not just for produce, but for the meats and eggs and dairy products so many of us consume regularly.  Shop outside the box...at the farmer's market, or the local co-op.  We need to fight franken food before our other options vanish.  We've already seen GMO corn, soy and canola quietly infiltrate the food supply.  High Fructose corn syrup avoiders are starting to put up a ruckus as they discover how limiting their diet can be.  (Much to the amusement of us uncornies, who can't tolerate the corn in artificial sweeteners, let alone the rest of the derivatives.)  America dropped the ball on the food dye issue (the bandwagon comes back every now and then, but no one seems to want to jump on.  We'd rather follow at a distance.) 

    With genetically modified seeds running rampant, and foreign genes in our produce, it's not surprising that the meat is the next to go.  the question is where are we, as a society, going to put our foot down?  Does it have to have an immediate threat to get our attention?  If GMO's made our skin turn purple and our spleens explode within 24 hours, they'd get banned.  But it doesn't.  Like lead and melamine, it takes awhile before the devastating effects can be seen. 

    Unfortunately, when our entire food supply is at risk (not to mention the potential of our future food supply) one has to wonder just how much more vital it is to be safe rather than sorry.  We're already overmedicating mild conditions not suffered by poorer nations.  Digestive disturbances, behavioral problems, and childhood epidemics like the 4-As are skyrocketing.  Do we need conclusive proof to use our brains and say there's something unnatural about growing food in environmentally controlled petrie dishes instead of ouside in the sun, soil and elements?  After all, that's where it was designed to grow.  Fruit on trees, veggies on plants, grains as grasses, and meat on animals. 

    Exploding kids

    I never would have labeled Bumblebee as explosive.  Could she have tantrums?  Yes.  They were doozys.  But, I could generally ward them off.

    She was shy.  Is shy.  Tearful.  Sweet.  Explosive?  Not exactly.

    However, when I was (tearfully) venting about her episodes and my frustration to a friend, she mentioned the book "The Explosive Child", and at my wits end I picked it up.  What a book!  While I still didn't think "Explosive" was the best label for Bumblebee, I could certainly identify with what the book had to say.  The best thing was that it helped validate many of my parenting choices.  Most obviously, the fact that she gets away with a whole lot more than I'd allow her sister to get away with simply because she seems to need it.

    Fast forward a year or so.  I was looking up books on food additives, and the title "What your Explosive Child is Trying to Tell You" leapt off the shelf at me.  (Sidenote--why are books on emotionally difficult children and books on food additives and allergies and such so close together in the library?  They couldn't possibly be related, could they?)  I threw it in the bag.

    Reading it, my mouth fell open.  It's not that explosive is the right term for Bumblebee.  It's not.  She's not a ticking time bomb.  She's never been as volatile as some of the cases referenced in these books.  However, I've had this description of her tearful tantrums.  That she doesn't seem to be fighting to be difficult.

    In fact, there have been times when I get a good look in her eyes, and it felt as if she were caged animal fighting for her life.  We're talking a tantrum where she wanted the car parked in the driveway, and for some reason it had to be left on the street.  Or her sister sat on the right instead of the left.  Or I picked up Snowflake instead of Marigold when she asked for a stuffed animal.  Last straws that happen when she's already upset and we're on edge from her grumping.

    I've told dh that it feels like she plans out her life, and when the slightest thing goes wrong, she seems to melt down.  "Take me home,"  "Fix it," "Squares!" (when the waffle has been inadvertently cut into triangles) etc.  Certain toys have a mysterious "magic" quality.  The quilt that brought great comfort is tainted from being spread on the wrong bed.

    "Road map" tantrums, triggered by a child's internal "world road map" changing (and therefore "ending") describe this same observation.

    They also reinforce that horrid habit I have, the one that draws the dirty looks and shaking heads at a grocery store.  The one that manages to procure one or two if not several "not my kid..."s under people's breath.  I don't immediately up and leave.  For her, this is rewarding the behavior.  It's good to read that I'm doing the right thing.  It's also good to read that it's okay to expose her to frequent routine changes, and that it's perfectly acceptable to quickly avoid an incident turning into a full blown tantrum.  She doesn't want to meltdown.  I don't want her to meltdown.  No one wants to be exposed to that.

    The book did catch me by surprise with it's chapter on none-other than food related triggers.  They identify food colorings, preservatives, and CORN as top triggers.  Corn!  Corn allergy!  In a book!  Published recently!  I was nearly giddy.

    I'm not sure the book provided any new tips, other than to reassure me that my instincts are right, and that we're on the right path (even if it feels bumpy, slow and indirect at times)  But I'm happy to see corn in a mainstream publication, and food triggered reactions getting more attention.  This book was not aimed at the homeopathic, granola crunching, yoga-class going moms.  Which means we're breaking into the mainstream.

    Bumblebee's input?  She caught me reading the book.  Looked at the title, broke out in a huge grin and crushed it between us as she gave me a huge bear hug.  "Mommy!  You're going to understand me!" 

    Thursday, January 07, 2010

    "I want a new sister!"

    Fed up with migraines, and longer homework assignments, and the tweenager attitude, Bumblebee has decided that she needs a new sister.  She complains.  She whines.  She points out that a new model would be less work all around.  And wouldn't cost a thing, since we're all set for Penguin. 

    Unfortunately, she's been informed that a new sister is completely out of the question. 

    So she devised a new plan.  She'd like her best friend C to trade places with Penguin.  Penguin likes C's sisters.  C's mom could probably use Penguin's help babysitting.  C does not like her sisters and is too young to babysit. 

    Penguin could sleep in the bottom bunk at C's house, and C could sleep in the top bunk here, eliminating the "top bunk is too scary" bedtime battle we have nightly.  (Their bedtime battle is apparently over the fact that the bottom bunk is too boring.)  C would play good games with Bumblebee.  They would go to the same school, together, at the same time.  This would be easier for everyone.  They could share clothes. 
    She saves her best argument for last.  "AND, C doesn't even like cheese, so she won't mind not eating any if she's my sister."  (I guess if they switch places, allergies are automatically reallocated?) 

    "Hmmm,"  I answer, "But what about gluten?  She might miss crackers, and sunny butter sandwiches." 

    Bumblebee freezes.  She cocks her head only for a moment before saying, "Well, she can't have everything you know!  She'll just have to get used to it!" 

    And she storms off to sulk in her room.  

    Later both kids come running out to inform me that I'm having another baby. 
    WHAT?
    In 3 years. 
    Huh?
    It's going to be a girl. 
    Blinking eyes really fast.
    And, it won't have migraines or food allergies. 
    Bumblebee grins. 
    I look hopelessly from one face to the other. 
    "We asked the magic 8 ball." 
    Oh.  Well, of course.  

    At least they're on speaking terms again.  And it looks like Penguin can stay. 

    Wednesday, January 06, 2010

    Adults don't have food allergies.

    Mythbuster alert.

    Adults get food allergies.  Adults have food restrictions.  Even worse, adults are more likely to have dietary needs than children.  It's just more emotional for the onlookers when kids are involved.

    I recently brought Bumblebee to a birthday party.  This was a new kid in her class, and I felt very motivated by the fact that she paused, sighed, suppressed a smile and said "Well, I think it would be nice to go because it would make her happy, but I'm scared to go, but maybe I'll go if you think I should."

    It was progress for her.  She was going. 

    Fast forward to the front door.  We're invited inside, where a few other parents are sitting, and Bumblebee is absorbed by the party-goers.  I sit, as urged, and smile at the other parents whom I recognize, and a plate is presented to me.

    With a sinking heart I say "It looks delicious, but I can't.  Allergies."
    There's a crestfallen look as the poor hostess begins to explain that she knows it looks strange...
    And I attempt to reassure her that it really is allergies.  Serious allergies.  Others break in. 
    "Really?  It might be okay, what are you allergic to?"
    Cornstarch, corn syrup, gluten...
    "Oh, maybe not then..."

    No, probably not.
    I'm falling into the vortex, now.  You have food allergies?  (yes)  So you didn't outgrow them? (No.)  I couldn't deal with it, (Wanna bet?) Is it really bad?  I mean, do you really need to be careful?  (Yes.  Thats why I'm being careful.) 

    I'm later offered the 'normal looking' pizza, and answer a few more questions.  Politely.  Changing the topic, or attempting to.  Suppressing the urge to scream "Yes, I'm an adult with food allergies.  Get over it already!" 

    At this point, I'm wishing I shoved Bumblebee through the door and ran away. 

    But why should I hide?  And thinking about this experience, no wonder people feel awkward with their restrictions.  Of course they want answers, cures, pills.  No wonder it's so hard to track down an allergen.  And i realize, too, why exactly I've withdrawn so much from social situations.  Not that the socializing itself is tough (although it can be, when my stomach threatens) but because I'm in a spotlight.  I like being a wallflower.  I like blending into the background now and then. 

    This is also why I wear my allergy awareness shirts sometimes.  They draw attention, they draw questions, but they fend off certain awkward situations.  Thank heaven I am a parent and have excuses to force myself into a social situation, however uncomfortable.  Otherwise I'd probably stop hanging out, period, after a few of these episodes. 

    I'm not sure if people are in denial about the extent of their own food intolerances (many times they confide that they ignore doctor advice to give up gluten, or dairy, and live with the consequences.) or if they suffer the symptoms as a badge of courage.  "I'm an adult.  I can suffer heartburn, and indigestion, and break out in rashes, and still make it to the hockey game after a full day of work."   Or maybe they really don't realize that food and health are as intricately connected as food and socializing. 

    I'm dreaming of a day when someone puts up a hand and says "food allergies" and everyone else just shrugs and keeps talking, while the hostess maybe, possibly, politely asks if there is any easy accommodation and the allergic individual can partake of safe refreshments or simply be satisfied with pleasant company.  For as long or as short as they feel like staying. 

    Of course, I'm also dreaming of a day when I wake up and realize I've felt great for weeks and am actually caught up on housework (or close to it) and almost bored.  What can I say?  I'm a dreamer. 

    Tuesday, January 05, 2010

    Happy New Years!

    It's that time again.
    Another year has been and gone.  Time to reflect upon the lessons from the past, and contemplate the future.

    2009 was Mr. Violet's first full year working away from retail and he loves it.  But his job is still influenced greatly by economic spending so we enter 2010 with a certain degree of uncertainty.  We also get new health insurance, which means brand new doctors.  A potentially mixed blessing, given our palette of  health concerns and informed choices.

    Penguin graduated Elementary school, and is growing into a lovely tween (even if I do say so as her mother.)  So far, I'm liking choices she makes and the reasons she makes them.  Although sometimes she also leaves me utterly baffled.  I'm told that tweens are notorious for befuddling their parents.

    Bumblebee gave up food dyes.  Not sure what the greater impact of this decision is yet, but I don't really want petrochemicals in her body regardless of their obvious effects.

    And me?  I'm hanging in there.  One New Years Resolution will have to be to get my gut back under control, since for the last several months it seems more like it's dictating plans rather than occasionally reminding me it's there.  (The new doctors, fresh outlook, thing might help that.  I'm planning to keep an open mind.)

    As a family, we're doing good.  Last year's resolutions went well.
    Although we didn't find 3 full meals that we ALL can and will eat, we did find time to sit together as a family several times a week.  Lots of meals that will feed 3, and the fourth will either eat what's safe, or get a snack afterward.  We're eating too much rice.  But, well, at least it has fiber. 
    I've read more this year, although I didn't quite make it through the alphabet.  I read multiple books in each letter I covered...surely that counts for something?  I'm looking forward to continuing the reading in the new year...especially nonfiction. And the girls talked me into starting a reading blog, which we'll hopefully update in the new year.
    I didn't gain the weight I need to.  The summer-long stomach flu didn't help.   But I did reintroduce chicken, tuna, wasabi, and nutmeg to the dietary repertoire.  In fact, we've tried a new food every other month, failing only soy and raw stuff.  :) 
    Our spending has been much more thoughtful.  Not that we were ever big on buying throw away toys, but it does get challenging when birthdays come to balance fun affordability with environmentally responsible options.  (We use real plates, our trash can is rarely overflowing on trash day, but we've room for improvement.  Party favors are tempting, even if they'll only last ten minutes.)

    We do have some resolutions for the new year.  Well, we've been working on them for awhile.  The calendar change gives us good motivation to stop talking and act.
    • The most important, I think, is the only one I'll share.  This will involve less chocolate, more meal planning.  Set in stone: Every weekend we'll make a platter of cut fruit or veggies for after school snacks and to add a handful of to lunches.  It won't last the week, but it'll get more easily available nutrients into the kids and dh.  (I'll strive to eat something nourishing, and not pine for the raw stuff I can't digest.)  It will also involve more walks.  Hopefully once a week, at least.  Depending on Penguin's migraines and Mr. Violet's knee, of course.  This may be good motivation to resurrect our park parades.  Or maybe just walk around the block now and again.  

    Thursday, December 24, 2009

    Santa, Please don't pass us by! (We have gluten free goodies)

    It's Christmas Eve.  To me, this is the most magical time of the year. 

    Tonight is the night of magic.  I treasure memories of candlelight services, and our new tradition of a Pajama Ride to help calm the kids before they need to curl up in bed (Although this year it was hard to convince them we needed to wait until dark before setting off.  The lights look better in the dark, and it's closer to bedtime.)  We were disappointed to see that our favorite house was toned down a lot.  I suppose after 10 years of awards, they deserve a rest! 

    But I suppose the best part, at least for some of us, is the baking.  This year we attempted to resurrect one of my very favorite childhood memories and create a variety of treats.  (Quite the challenge when you're working with rice flour, oil, applesauce, and eggs.  With sugar.  And that's about it.)  But we managed.  And surprisingly, we even had a delicious surprise with the pinwheel cookies. 

    Santa is going to be one happy man!  Although we have it on good authority that he has a few gluten free elves, which Mrs. Santa busily prepares allergy friendly goodies for.  We think these look good enough that he might, just might, slip a few in his pocket to bring home.  :-) 

    After 4 years on the gluten free bandwagon, maybe I'm starting to get this thing down? 
    Merry Christmas everyone! 

    Saturday, December 12, 2009

    It's beginning to look a lot like...

    After begging, pleading, beguiling, and wheedling, Ms, Bumblebee has gotten her wish.  We set up our Christmas tree, decorated it and have begun tucking little remembrances underneath of it.

    I've been reading a lot about the evils of plastic, paint, and outdated chemicals (Not to mention the questionable current ones) lately,  So as we pulled out dusty boxes and started our decorating process, my thoughts slid from logistics and Christmas carols to lead paint and BPA.

    I let my mind wander to the ongoing debate of a green Christmas.  Which is more environmentally friendly?  A fake tree, or a "real" pine tree?  When a living one just isn't feasible, anyways?

    Most arguments seem to surround the length of usable time we get out of the average artificial tree.  I've seen estimates ranging from 3 to 10 years.  And since plastics take forever (yes, forever...I'm not hyperbolizing.)   to break down in landfills, often ending up in a huge plastic island in the middle of the ocean, the cost just doesn't seem worth the benefit.  However...it takes nearly as long for a tree to grow.  Even under the best of responsible farming practices. 

    There are also allergies, bugs, sap, etc to contend with.  Not to mention potential pesticides and other treatments used on affordable trees.

    My tree is artificial.  It's also not entirely plastic, and probably covered in lead based paint.  You see, it once belonged to my grandparents, circa the late 60's.  Well before I was born (and no, it's not glittery or pink.  It may have been crafted before technicolor trees were in vogue, I'm not actually sure.  The box itself disintegrated and the instructions have long since vanished.  But it's faux pine, intended to look realistic.)  When my parents moved, their lovely tall tree no longer fit in the living room.  They had to choose between cutting a hole in the ceiling, and replacing the Christmas tree. The ceiling won, their tree went to my Grandpa's church and my Grandma's old tree went into my parent's living room.  I have fond memories of helping my dad sort through multicolored branch tips as we spread everything out in the living room and crawled around trying to remember which color came first.  Eventually my parents tired of the stress, and we tried chopping our own, or shopping at a corner lot, but I still vividly remember "our" tree.

    So when I had kids, and decided it was time for a full sized tree on a pint sized budget, I called up my parents and asked if they happened to still have the pieces in their garage.

    "You don't want that old thing," they said.
    But I did.

    And now it just wouldn't be Christmas without a tangle of branches to ease into pre-drilled holes, a tumble of "fuzzies" to hide the wooden dowel trunk (Does anyone know how I can replace these?  We seem to lose a few every year)  and the kids teetering between "The tree, the tree!" and "I don't think it's going to work, Mommy..." and "It's looking right!  It's looking right!"

    My tree is artificial.  Putting it up might be a hassle, and taking it down twice as bad, but in the end, it's our tradition.  We'll keep it in our garage, instead of the landfill, lead based paint and all.  We'll wash our hands, and avoid chewing on fake pine needles. If I were to stop using it, it would stop being "green" and end up in a landfill.

    So we'll sit in front of the twinkling lights, letting our thoughts go.  And enjoy our "real" tree.

    (And before anyone mentions it's bedraggled state, once it's decorated, I get plenty of comments on it looking real!)

    Wednesday, December 09, 2009

    Stress vs Snow

    "I can't even go skiing!" 

    "Uh, Hm, huh, wha?"  I watch as a range of emotions parade across my husbands face, not one of them shock, horror, or even righteous indignition.  He finally settles on a confused "Um, Hon?  You don't want to ski.  You'd freeze." 

    My husband must have thought I'd lost my mind.  After a long day at work, followed by a long day in the hobby shop (working with metal), this was how I greet him at the door.

    With indignation at the idea that ski slopes are off limits to me.
    He's right, I don't even want to go skiing.  Or tobogganing.  And it's not like I can sit by a toasty fireplace sipping hot cocoa while watching everyone else build snowmen (I'd probably lose my feet and most of my fingers to frostbite just trying to help unload the car.  My fingers turn a lovely shade of blue when I drop Bumblebee off at school each morning.  Which isn't as disturbing as their lack of sensation.)
    But I don't think that the idea of placing corn-seeded artificial snow on the slopes is really all that hot of a plan either.  What about other uncornies?  (The ones who don't turn blue?)  What about the environment (Not that hundreds of visitors whizzing by on skis is all that hot for a mountaintop)?  What about common sense?

    Where's that corn going to end up?

    Oh, right.  It's environmentally friendly.

    That's why artificial snow displays which include plastic snow also include corn.  And if it will be in a relatively dry area, corny soap flakes.

    I'd post more links but the act of ice freezing and refreezing creates something known as "corn snow"  This has nothing to do with real corn.  Artificial snow, on the other hand, is made using real corn.  Regardless of whether it creates corn snow.  Please note that the microcrystalline cellulose referenced in one of the above articles is a corn derivative that many, if not most, uncornies react to.  It's used in a variety of medical applications due to it's otherwise apparently innocuous effects.  There's no protein, and it's inactive, so most doctors will tell you it can't possibly be the culprit. 

    So if you're uncorny...don't de-stress on the slopes without thoroughly checking out their usage of artificial snow and the nucleating agent used if they do seed the slopes.  Vacations should make you feel better.  Not put you in bed. 

    *sigh*
    I hope the microcrystalline cellulose doesn't make it into the water supply. 

    Friday, December 04, 2009

    "Mommy, I'm scared," says a small voice beside me as I peruse websites. She's supposed to be doing her own homework, namely reading the book in her hand. Instead? She's reading over my shoulder.

    I'm not reading about nuclear weapons, American troops being deployed, violent crimes or even natural disasters. The terrifying topic of my research?

    Plastic.

    Number 5 plastic, specifically. And the fact that it can be bonded with corn polymers, and coated with corny residues.

    "Corn's taking over the world," she whispers. "What's going to happen to you?"

    I haven't gotten that far. I joke about it of course. "There's corn in that. There's corn in that, too." But the reality...well, the reality is just too big. I know that the problem is bigger than corn. And yet, corn also makes a pretty good summary of the problem. It's everywhere, we (society) almost fail to see it even when clearly listed.  We think of it as a necessary evil or a beneficial addition or a useful but benign filler. It's environmentally "friendly", at least compared to petrochemicals.  And it's simply there, ready to be used.  So of course certain sectors seek new and ingenious ways for our throw-away society to use more corn. 

    Not everyone thinks corn is all it's cracked up to be.  And it's not just the uncornies of the world who are disillusioned.  Although corn plastic is biodegradable, there's not enough space in the landfills to allow it to properly degrade.  Which taxes our resources, however allows us to think that by using a surplus of corn we're somehow doing something good.  Oh, and of course, the process of producing corn plastic and transporting it around takes it's toll on the Earth's resources, too.

    Then there are Michael Pollan's followers.  These are the people who see the inherent dangers on depending on one single crop for so many uses.  The same people are concerned about the lack of variery in our apparently diverse diets (Here in CA, it's not uncommon to eat a meal from a different country every day of the week.  What do Chow Mein, linguini, Pho, Miso Soup, Pad Thai, and Hamburger Helper have in common?  Corn and wheat and soy...depending on the ingredients used, of course, there are ways to make them safe.  But chemically, commercial dishes all look pretty much the same to your body.  Regardless of what your eyes and tastebuds think.)

    I'm not sure what the best course of action is.  Do we fight it?  Do we all boycott corn?  We can't simply accept it and wait for "someone, somewhere, to do something."

    For now, I hugged her, and told her that corn is not taking over the world.  Good always wins, doesn't it?  Even when it's not really a battle.  And when the "evil" is an amber wave of grain. 

    Wednesday, December 02, 2009

    Holidays, food and allergies

    It's that time of year again. The dreaded, *ahem* I mean Much Anticipated holidays. Complete with holiday parties, potlucks, cookie exchanges, and other winter celebrations.

    Every one of them seem to involve food.

    And again, support boards are filling with questions. They run along the lines of "I want to make this particular kind of recipe for my child's class/neighbor/church group. But, we have a very strict no (insert allergen list here) because so and so has a severe allergy. I really want to include so and so. Will this be safe?" Sometimes there are addendums about overprotective parents. Sometimes there are addendums about being knowledgeable because of personal experience. But it all boils down to the exact same firm answer.

    Maybe.

    First things first: Don't assume that someone is overprotective or overcautious. Only the intolerant individual (or their parents) really know the extent of their personal risk. And if you've ever seen an anaphylactic reaction, especially in a young child, you will do anything at all to prevent it. (From banning peanut butter to chopping down walnut orchards.) Worst case scenario in the case of anaphylactic allergies really is death. It may not be likely to happen, but it certainly spoils the holidays for the unlucky few. And for those who simply experience food "intolerances", shall we say that some believe in fates worse than death and leave it at that? Their holidays might not be much fun even if they DO survive buttered muffin tins.

    The point I'm trying to make is that even if you do go the extra mile to ensure that your food offering is safe, accept the possibility that the recipient will still politely decline it. After all, they are the ones who will deal with any consequences.

    The less severe the potential reaction is, the more likely a person is to risk "other people's food". Especially in classrooms. (everyone wants to feed kids sugary treats.) And the younger the kids, the more important the difference is.

    Before going the extra mile, it's important to know how "allergic" the potential reactor is. There are 3 general levels of food avoiders. Level 1...Will break out in hives and need benedryl if someone opens a jar of peanut butter in the same building. (Okay, I'm exaggerating. A lot. But Level 1 has a severe allergy, and will not be allowed to eat your cookies no matter how safe you think your kitchen is. Mom will need to actually supervise any food prep. Bring fruit if you really want them to be safe, unless they're anaphylactic to it, too.) Level 2 has an allergy, may carry an epi, but can tolerate low levels of cross contamination. This means they might eat a box of crackers that carries the statement "Made in a facility that also processes: XYZ" but can't eat a cracker off the same platter that has cheese slices on it, even if the cheese slices aren't touching. Level 3 is the tricky gray area of intolerance and potential allergens. Usually these parents have been advised to avoid the offending foods for a variety of reasons, and left to decide how cautious they need to be. Some will make exceptions for special occasions and deal with the ensuing reactions. Others will be super vigilant. Most will permit food that doesn't contain the allergen (or obviously contain the allergen)

    The best thing you can do is talk to the parent or the sufferer ahead of time. Ask what their comfort zone is, and see if you both are comfortable accomodating their needs. Of course, this isn't always feasible, and sometimes you get vague answers. Hopefully the vague answers will lead you to an approximate reaction level (1, 2 or 3) and you can proceed with the following in mind.

    For a level 1 reactor, make sure to avoid their allergen in the actual food product, bring recipe or product labels just in case, but make your peace wit the fact that the kid in question probably will skip it. Your part is to avoid putting them in the hospital just by being in the same room.

    For a level 2 reactor, start with safe ingredients (preferably from a new package, since it's easy to cross things like flour and sugar by using the same measuring cup) And make sure your tools are all doubly clean. Avoid wooden spoons, which have deep crevices that may not grow bacteria but certainly make good hiding places for allergenic substances. Keep all of the potential allergens covered and put away during the prep process. (In other words, don't let your husband scramble eggs while you're carefully preparing eggless cupcake mix. The chances of cross contamination are slight, but they disappear when the eggs stay in their shell.) Think out each step of the process. It won't do to grease the pans with an allergen after you've carefully avoided it. Consider decorations, too. Powdered sugar can have wheat or cornstarch. Sprinkles, chocolate chips, frosting...all have potential red flags. Bring ingredient lists with you. Cut them out or take a picture with your phone/digital camera just in case there are questions later.

    For a level 3 reactor...you can relax. Read ingredients. Bring labels if you can, and try to remember brand names. But don't gnaw your nails off worrying about the cup of milk your son was sipping as he watched you whip up those top 8 free brownies. Knowing your kitchen isn't allergy friendly, but that the brownies are (and having the ingredient list) is all the level 3 person needs to make a decision. (I wish we were all level 3's)

    Of course, the best thing you can do for allergy families is take the focus off of food. Bring stickers, boxes of crayons, or junk jewelry. Or jump on the healthy food bandwagon and look for healthy alternatives. Fruit skewers, veggie platters, meat and cheese platters will all help to avoid the mystery ingredient issues and they lower everyone's stress levels. No one worries if veggie trays will crumble without the egg, if fruit skewers will taste wrong without real butter, or if the crackers will fall in the middle. There's also the benefit of having "real" food available. Most kids are too excited to eat before parties...but will happily devour anything that ends up on their plate and looks appealing. Even if it's healthy. And when you've had 4 other class parties in the past week, anything that isn't covered in frosting will appeal to all the parents.

    Everyone wants their goodies to get rave reviews. Everyone wants to be "That Mom". They want to provide the eye popping experience, the awesome dish that gets raved about for weeks to come. But food really does add stress to the lives of allergy sufferers in ways that "normal" people can't imagine. Kids have to be trusted to have willpower beyond their ears. Adults have to walk a fine line between precaution and courtesy. And everyone wants to sit back and enjoy the holidays.

    So if you really want to do something nice for someone with allergies...relax. Make your favorite signature dish, taking reasonable precautions. Give details of the ingredients in minute detail. (Even cooking spray has potential allergens) And then turn a blind eye to those who choose not to partake. They aren't trying to spite you. And they are just trying to enjoy the holidays as much as you.

    Maybe it would help if we think of it this way. Allergy sufferers aren't just trying to avoid a nasty reaction. They're also protecting the baker from the guilt of causing one, and the other guests from witnessing it.

    Monday, November 23, 2009

    I only have a moment tonight. But I want to post a tidbit from a current read: "Our Stolen Future" by Colborn, Dumanoski and Myers.
    On pg 191-192, they are discussing the potential effects of PCBs in contaminated fish on children whose parents ate said fish. A psychologist named Helen Daly has been studying behavioral changes in rats fed Lake Ontario fish. The expected results of her test (which involved feeding a small group of rats a diet 30% fish) was that the diet would turn them into dummies. It would affect their brains and intelligence level. This seems a plausible expectation for the consumption of toxic chemicals.
    However, they found behavioral changes that were unexpected. While there were no signs of learning deficits, indicating that intelligence levels were not adversely effected, the rats showed distinct behavioral changes. Standard testing showed decreased activity.
    This behavioral change has been demonstrated repeatedly.
    Rats fed a diet of 30% contaminated fish (fish that have been raised in Lake Ontario) over react to even mildly negative situations. Daly describes them as "Hyper-reactive". When comparing hteir reactions to humans, Daly is quoted as stating "Every little stress will be magnified."
    Some studies done on children with high known levels of exposure have indicated a possible correlation to human experience.

    Does this remind anyone else of Sensory Processing/Integration Disorders? Or Highly Sensitive Children?

    PCBs aren't only found in fish. They were used as plasticizing agents in paint, flexible plastic coating for electrical wires, caulking agents, dusting products, flame retardants, adhesives and pesticide extenders. They do not degrade readily, so are still present in our environment. They tend to accumulate in lakes and rivers, where they bind with plant life and are consumed by sea life. The higher the animal on the food chain, the higher the concentration of PCBs and other chemical contaminants. (Interesting side note: PCB production was taken over in 1929 by non other than our beloved Mons*nto, the GM corn giants.)

    One of Daly's most disturbing findings is that pcb effects are seen in second generation rats. So if rat generation A eats PCB laden fish, generation B is affected, but fed only a carefully monitored diet of PCB free fish, the researchers are still seeing abnormal reactions in generation C.

    In other words, what scientists unleashed on our grandparents is haunting us today. What we do with our bodies, wittingly or unwittingly, will continue to affect our grandchildren regardless of whether we are here to play a part in it.

    Of course, this has nothing to do with corn. But it's interesting all the same.
    In the end it's still just stress. Stress on our environment, stress on our bodies, stress on our children. However, these studies show that somehow we may be inhibiting their inborn ability to handle stressful situations.

    This isn't an answer. But it sure seems like a significant piece of many puzzles our society faces.

    Friday, November 20, 2009

    What's in a label?

    My daughter Bumblebee is...intense.

    She's always been exceptional. Exceptionally sweet. Exceptionally loud. Exceptionally shy. Exceptionally quiet. Exceptionally precious.

    When she was 2 ish, we went to the doctor for some run of the mill cold. She was terrified, and turned off. I was irritated with her. He suggested an evaluation for autism.

    I struggled with the thought, the number for First 5 California in my hand. But as I snuggled her close and held a 2 sided conversation with her about the incident, I felt that autism was way too extreme. Out of the question.

    My child was shy, that's all.

    When she buried her head in my lap after racing off the playground with a high pitched scream because 2 other kids appeared on the monkey bars, I felt a fluttering of concern. But a label?
    Our next discussion with the doctor left me thinking she was just special. Shy.

    Yes, shy. Shy was a good label.

    When she collapsed in the middle of a new gymnastics class, carefully covering her head so she couldn't make eye contact with the coaches or the helpers (who promptly chased me down in the parking lot, to return and sit through the next 8 "No parents allowed under any circumstances" classes) I shook my head. She's exceptionally shy. But special, we all agreed. There's something about her.

    Discussion with the doctor left us reassured. Sure, there's something. There's something about everyone. She's shy, obviously. We could look for another label. But is it worth it? Labels tend to follow children. They set them up for expectations in school. They can leave the kids giving up on themselves. Labels lead to medication. What did we want in a label? What we were doing was obviously working. And she was sure to outgrow it.

    When she started Kindergarten, our hearts soared. She came home grinning and full of stories (we later learned her part was played much differently than the version we heard from her, but hey...they were great stories)
    They plummeted as soon as she tired out and began crying. When she'd cried for a week straight questions arose.

    We ruled out bullying, abuse (I'm still smarting from the inquisition of my older daughter, although she didn't know what the implications were. Of course, we had the same questions to rule out about school personnel, so how offended can I be?) and physical issues. Her teacher was a saint who'd loved her since her sister was in Kindergarten 4 years previously. That left...something. Our combined patience would have impressed Job himself.

    Again, the doctor's "We should think about evaluating her, have we talked about autism?" comment haunted me. Millions of teen-mom talks returned to replay themselves in my head (and I wasn't quite a teen mom. More of a college mom. I was 24 when Bumblebee made her appearance. But around here, that's early.) All those red flags I'd been ignoring jumped out and flapped in my face. Something was WRONG.

    By May, she needed to be restrained so I could leave the premises. However, we all agreed that giving in and keeping her home was not the right course of action. She's bright. She reads ahead of her age level, her math skills are excellent, her comprehension on track or above. She had friends. She was grinning after school each day. Her only complaint about school was that it was too long and didn't have enough learning. But she'd cry in anticipation of my leaving.
    Starting the night before.

    The only diagnosis we could get was anxiety, with a question mark. It was out of her pediatrician's comfort zone, our insurance sucks and we waited for our last hope...the school counselor.
    She agrees. There's...something.

    But labels follow a child.
    Labels set a child up for preconceived notions.
    What would we really want from a label? What could it offer that we aren't getting now?
    Although she's struggling, whatever we're doing is definitely working. She's doing "better". She's just...crying sometimes. And screaming. Melting down on occasion. Without a reward. We're doing the "right things".
    A label might tell us why they don't work the way we want. But it isn't going to help the right things work any better.
    And do we really want to resort to medication? Because that's where labels lead.

    No.

    No we don't want to resort to meds. No we don't think they're necessary. No, we don't need a label.

    We thought we'd hit on something after reading "The Unhealthy Truth" and eliminated food dyes. And yes, food dye definitely impacts her anxiety. A candy cane recently set off the entire "You hate me, you hate me, you hate me! Stop hating me! Stop yelling!" routine when I said a simple "Hey sleepy head, it's time for school!" They handed them out in girl scouts the night before, and I wasn't thinking.

    But the fussing, the morning foot-dragging, the begging after school for a quiet day with no play dates and no carpool driving, the insistence on "Please let me stay home, I can call you. I know how to dial the phone, and I can call the police, too, if the house burns down or somebody breaks in." The refusal to go to a park, or the toy store, sometimes even a birthday party. It's wearing on me. And making me think again, there's something missing.

    I don't want to label her.

    But as our neighbor child watches with wide eyes and asks me in a stage whisper "What is wrong with her? That's not normal." I have to think again about labels.

    They may set kids up.
    But they also let parents off the hook.

    A normal child would never get away with the fits Bumblebee throws. But I have to balance the screaming with the fact that she holds my hand and hasn't thrown herself into the street or the fact that she's aiming her feet at her mattress, not her sister, not her friends, not her mom, not even the window. She isn't pulling things off the shelves. And if I reprimand her, she will. Not because she wants to be destructive, but because she's out of control. She's out of control, and scared. My job is to reassure her, protect her from herself as well as the people in the area who are judging and offering their two cents, or worse--intervening.

    Labels are answers. Even if they don't mean anything, if I could explain the tantrum with a roll of my eyes, an apologetic smile and "Generalized Anxiety Disorder" or "Sensory processing issues" or even if she were "on the spectrum," No one would even have to know what I meant. They'd just accept it and nod knowingly, walk away.

    It's not even something that happens very often, but when it does...I realize that labels do have a place. Even if it's just for parental piece of mind.
    Sometimes I wish we'd gone that route.
    But when it comes to parenting, I won't have the answers for another 20 years. And even then, I'll only know I took the right path if my kids decide to tell me I did. I can only hope I don't look back and know it was the wrong one.

    Saturday, November 14, 2009

    Online Safety

    I have an 11 year old dd. She is not allowed free realm on the computer. I monitor her email, her surfing, her homework site, her online gaming site (which is protected so that kids can't inadvertently share any identifying information)

    However, she has a life outside of electronics.

    After school, she went to an activity as usual. During this activity, there is lots of downtime for homework or reading. She reads. An acquaintance was playing with their DS. Penguin was called over when said acquaintance hissed "Hey, Penguin, what school do you go to?"

    She answered. Then was told that "this guy" in a chat room "knows her".

    The chat went something like "OMG, so do you guys know (insert popular nickname)"
    "You mean (insert last name)"
    "Yeah, I went to like preschool with her. Where does she go now?"

    They exchanged the names of several kids in the activity, and clarified when it ended in case he wanted to meet them. He didn't show up.

    She has been informed that she is to remain glued to the instructor until an adult she knows (carpool driver) arrives to pick her up, regardless of anyone knowing her name. She isn't even to go to the bathroom alone after this.

    But what bothers me most is that the instructors aren't concerned. The other parents I know at first were amused until I pointed out that mystery-kid didn't share any identifying info. He just claimed to know the other kids, by using common first names and nicknames. He was given first and last names of class participants, schools attended and the time frame they are least supervised. And everyone, including the parents, think it's cool. (Put this way, they no longer think it's cute and a whole lot of other kids are getting a talk about online safety, and how it extends to any text message setting.)

    Most likely it was a real kid. Sitting, waiting for a parent or sibling, bored out of his mind.

    But what if it wasn't?

    It's frightening to think how easily all this info was gleaned from kids. How anxious they were to share. Penguin has been given a quick, prettied up (but scary enough for her to listen) lesson in reality. There are bad people out there. If you can't see someone, you don't know if they're boy, girl woman or man. And you don't know how old they are. In the words of an old online friend, I'd much rather hug my child as I tell her a story I don't want her to hear, than hold her (or worse, not hold her) while I listen to a real life nightmare unfold.

    Wednesday, November 11, 2009

    Is Gluten Free really Healthier?

    The new "fad diet"; Gluten free! Is it really healthier?

    There seems to be a lot of confusion. Whole foods offers healthy options. Whole foods offers organic produce. Whole foods offers eco friendly products. Whole Foods also offers Gluten Free goodies. Therefore; gluten free is healthy for everyone, right?

    Well, maybe. But simply eating gluten free products isn't necessarily healthy for anyone (Celiac patients included!)

    As we've covered before, gluten is the protein found in wheat, rye, barley and sometimes oats. For people with Celiac Disease, it causes an immune response which damages the intestines. This is serious...without the little villi in your intestinal walls, you don't digest your food properly. Which means, you can get malnourished.

    Some people are simple sensitive to gluten. And with all the research going on, some people wonder if gluten is good for anyone. Others are concerned because a gluten free diet appears limiting. Could it possibly be safe to give up wheat?

    The thing is, our society relies too heavily on grains. It's not unusual for the typical American to eat a bowl of wheat cereal with some toast, snack on a bagel, eat a sandwich for lunch, some pizza and salad with croutons for dinner, wash it down with a handful of cookies and call it a relatively rounded diet. In fact, they just ate several days' worth of gluten (and corn) with a bit of veggie and meat thrown in for flavor.

    If you eat the typical American fare, and simply substitute your bread for a gluten free variety your pocketbook is going to take a serious hit. Your body won't thank you much, either. Gluten free baking relies on a variety of starches and sugars to create an acceptable mouthfeel, and please our tastebuds. In some ways, a slice of gluten free white bread isn't nearly as healthy as a slice of whole grain wheat. (Unless you have Celiac Disease, of course, in which case the whole grain wheat is equivalent to eating arsenic. Don't do it.)

    However, a healthy diet can be gluten free. Vegetables are gluten free. Potatoes, meats, eggs and fruit are gluten free. You can eat a varied diet, a rainbow of nutrients, without touching a grain of gluten. A gluten free diet that involves a variety of nutrients, from a plethora of sources, is perfectly healthy.

    However, like most diets, its easy to follow an unhealthy version. And too many people look for the easy way out. Eating gluten free convenience items, which have been altered to be gluten free, is no different than eating regular convenience foods all the time. Except that most gluten free foods aren't enriched with synthetic vitamins to make them look a little healthier.

    In other words, turning a dish gluten free doesn't "healthy it up". Leaving an ingredient out of a meal does not improve it's health content in and of itself. But there are a myriad of healthy, whole food menus that don't include gluten (Or dairy, or corn. At least, in their natural state). Since grains are a relatively recent addition to the human diet, real food can naturally be gluten free. And tasty too.

    I know my diet is far from ideal. My goal is simply healthIER. Not genuinely healthy. In this society, it would be pretty difficult to reach that lofty ambition.

    Thursday, November 05, 2009

    Surviving, with no regrets.

    I think we're going to make it.

    After 6 days of fever (the first 3 spent entirely in bed) for one, 2 days of very high fever for another, and Mommy trying to lose count of her own fever daze; I think we're on the mend. Mr. Violets is still managing to pick up the household chores, and going to work, too. (3 cheers!)

    I also have no regrets about not getting the H1N1 vaccine.

    Sure, I felt awful. And watching my kids suffer only increased this feeling of guilt. What if I could have stopped it? Good heavens, if I can suffer instead I will. (Especially as my baby girl just laid there with a fever of 104 that wouldn't budge, sipping at water and occasionally asking if I thought she'd be better in time to do her timeline at school. What could I say? "Not today, kiddo." Checked with the dr. No breathing difficulty, I wasn't really concerned about anything other than the heat that radiated from her tiny body. And the occasional tremors that started whenever she'd start to cool off, her body's way of increasing heat to bring her core temperature up to it's desired temp. 104. I've learned from her sister that 107 is now considered the "not compatible with survival" red flag. But most people stick with 104 since it makes you feel rotten enough to look scary and as far as germs are concerned there's not much difference between a 101 fever and a 106 one. Both will kill off invaders.)

    What's wrong with me? Has the fever cooked my brains? (Maybe, I was having some pretty interesting dreams about Percy Jackson...But only because the final book finally came in at the library, just in time for flu season.) A simple shot, a pinprick, a magic bullet could have prevented the past week's suffering.

    No, seriously. We had it. We're on the mend. We missed a week of school, for which I feel bad. I know that the school desperately needs the money it loses each day a student stays home, whether it's due to illness, funerals, vacations, lice, spinning to fast on the playground, or a bee sting. I know the that each day is important to academic success. I know that the routine of going to school daily is vital for the kids to learn, and respect, and accept.

    I also know that the flu happens. It's mother nature. It's life. It's a long lived cycle. Illnesses, epidemics, occur repeatedly throughout history. In fighting the flu, I felt like we were fighting a known enemy. Maybe the pathogen was more difficult to recognize. Maybe our powers of prediction were tested in this particular case. But in the end, it was us versus a virus. It felt like a fair fight.

    Vaccines carry a lot of risks. Maybe it's just because I personally experienced a potentially life threatening reaction of partial paralysis (considered to be only a theoretical risk) but I'm wary of using medical science to try and outsmart nature. I feel like when we accept a vaccine, we're still playing a part in a massive double blind study.

    They are predicting that the risk of serious adverse reactions are less than 1 per 100,000. That means that if everyone in the US were to stick their arms out for a vaccine, 30,000 would theoretically be damaged. Sacrificed for the good of the rest of the population.

    Out of over 300 million people, 30 thousand really doesn't sound like so many. However, if you are the one in 100,000 your opinion will probably change significantly. The CDC admits that the vaccine was rushed. The multi-dose vials do contain thimerosol (an additive that's been linked to all sorts of nasty side effects.) For those who the vaccine takes effectiveness in (It's not 100% effective) it can take 10 days for immunity to take hold. Kids require 2 vaccines, spread 2 weeks apart. And vaccine clinics are just starting.

    Quite frankly, this is early in flu season. Even if we'd jumped on the bandwagon, odds are that we'd have been hit anyways.

    I'm not saying that vaccines are bad. They are one of many important tools we can use to protect those who are particularly susceptible. Infants, people with immune disorders, the elderly. (Although, the elderly seem to be pretty resilient against the current threat) I am saying that I felt much more at ease fighting off an infection using my own defenses than I'd feel watching my children rally against a reaction to an unknown agent. Is it a preservative allergy? A reaction to the vaccine itself? A different virus? Will there be permanent damage? And of course the haunting questions yet to come...Did I cause, or even contribute to, this (insert medical condition here) by pinning down my baby to inject her with something, just because everybody else was doing it?

    Sunday, November 01, 2009

    It's NOT just in your head...

    For years doctors have claimed that the vast majority of gut complaints are the direct result of emotional stability. Stress. Anxiety. Control issues.

    Elaine Gottschal watched a diet prescribed by Dr. Haas heal her daughter. She went on to write a book, now published as "Breaking the Viscious Cycle," which embraced the theory that gut bacteria were intrinsically linked to whole health. Especially gastrointestinal health.

    Elaine went on to explain that the bad bugs crave sugar...in essence causing the human host to crave sugar. (Try and explain this to the typical MD, and he'll try very hard not to laugh directly at you.) She also explained how obesity can be caused by starvation...the bad bugs "stealing" all those yummy carbs and sugars.

    After only 60 years or so, medical science has begun to wake up and agree. Those carb cravings may not be just in our heads (and tastebuds). Neither are they a product of our genes. Nope, studies have proven that people who eat chocolate have different intestinal bacteria than people who do not eat chocolate, leading to a difference in various metabolic byproducts in the blood and urine of test subjects.

    Studies have also proven that intestinal flora changes after a change in weight.

    Scientists feel this is exciting because if we can find ways to manipulate the bacteria, we can nudge it in the right direction for people trying to meet specific goals.

    I wonder what far reaching research could lead to? They're already experimenting with certain parasites to treat Crohns disease, acknowledging that probiotics are vital for intestinal health, and begrudgingly admitting that natural vitamins might serve humans better than synthetic ones. What can gut bacteria teach us about allergies and autoimmune disorders?

    What else is "all in our head", but really tied to the gut?